The three objectives of the national strategy against endometriosis

Improved research, early treatment and better information for the general public. These are in summary the three main axes ofe the national strategy for the fight against endometriosis launched by Emmanuel Macron on January 11. With these words pronounced by the President: “It is not a problem of women, it is a problem of society. “The objective is therefore to raise awareness, diagnose and take charge of this debilitating and painful disease. that affects 1 in 10 women or about 2 million people in France. Endometriosis is an inflammatory and chronic disease of the female reproductive system caused by the development of a womb lining (the endometrium) outside the uterus, colonizing other organs (peritoneum, ovary, proboscis …).

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The leading cause of infertility in France, it remains poorly understood by society, health professionals, and the world of research. The people who suffer from it thus see their quality of life affected in their work environment, in their personal life and in their private life, without the health system currently being able to offer everyone an appropriate response. In spring 2021, the Minister of Health Olivier Véran had entrusted Chrysoula Zacharopoulou, MEP and doctor in gynecology, the development of a report of proposals for a national strategy against endometriosis. “This consultation work gave rise to a rich report ofe more than 150 concrete proposals in the short and medium term. », Explains the ministry on this subject.

A diagnostic wandering of seven years on average

It is this report submitted to Emmanuel Macron which therefore designates three priority actions within the framework of this national strategy led by Olivier Véran. The first is to understand endometriosis, its causes and consequences by launching a national research program. “In addition, by relying on the 6 national cohorts, the largest epidemiological database in the world dedicated to disease will be established and can serve as a basis for numerous national and international epidemiological studies. »Specifies the Ministry of Health. The second priority is to mark out the diagnostic and care pathway: allow rapid access, throughout the territory, to reliable and rapid diagnosis followed by quality care.

Because currently, the finding is clear: diagnostic wandering is on average seven years (even 10 years according to a ComPaRe Endometriosis study presented in October 2021), which causes a real delay in treatment. On this subject, the ministry underlines that “of the territorial sectors specific to endometriosis will develop in each region under the aegis of the Regional Health Agencies (ARS). They will make it possible to inform, train, organize the diagnosis, treat and if necessary direct towards surgical centers. »Concretely, it will be a question of setting up a recourse and expertise center identified by region which will act as of training center and dissemination of knowledge in towns and hospitals, in connection with the associative fabric.

Better inform women in all walks of life

Finally, the increase in knowledge about endometriosis for the entire French population is the third emergency, as the impact of the disease on the daily lives of many women is significant. The Ministry of Health wants to create an “endometriosis reflex” for all audiences, whether at school, at university, at home, at the office, and in medical circles, to raise awareness of the disease and make better use of available treatments. “This better knowledge of the general public will be possible thanks to the involvement of associations, ambassadors and expert patients of the disease. »He estimates. Likewise, endometriosis must become a priority in the initial and continuing training of health professionals.

It is on this precise point that insists l’association Endomind, who considers on his site that “We are faced with a cruel lack of professionals who are sufficiently trained and capable of diagnosing and monitoring the large number of affected patients. This has a considerable impact on the deadlines and the quality of the management of sick who are wandering and have to make many trips to access proper care. “If she welcomes the integration of the theme in the course of medical students, it is essential, according to her, that health professionals already in activity can also be trained. The association also welcomes the launch of a national information campaign intended for the general public, especially adolescent girls.

In order to implement these proposals, Minister Olivier Véran will bring together on February 14 a national steering committee which will bring together ministries (Education, Work …), doctors, researchers, associations and expert patients. For Endomind, “the announcement of this strategy represents the realization of years of hard work to make the voices of patients heard, but also of intense months of collaborative work during which we have mobilized so that this strategy does not deviate from its priority objective to help millions of people affected by this disease. The latter nevertheless says it is vigilant to ensure that adequate resources are allocated to all of these “ambitious” measures, and while waiting to know the budget that will be allocated to this plan.

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