Indeed, the disease, which causes fatigue, problems with vision, balance and walking, manifested in Samantha’s case as blindness when her temperature was too high. “I had an MRI and a lumbar puncture to confirm my diagnosis,” she told the Mirror. “There are a lot of invisible symptoms: if I take a hot shower, I lose my sight. Same thing in summer, if the temperature is too high. “
Originally from Newton-le-Willows, England, Samantha now takes care of her two daughters on her own, while she has to use a cane every day. “I have extra aids around the house, rails and fixtures in the bathroom to help me with my showers and that sort of thing. There are little things like having difficulty filling out a form when my kids bring it home from school because I have trouble holding a pen. My children help me a lot with cooking, lifting the pots from the stove to the sink… ”
Samantha is on a waiting list for NHS treatment, but believes her best hope is to travel abroad to receive experimental stem cell treatment. “It’s a risky and potentially dangerous procedure, but I don’t have a lot of options. If there is even a small chance to stop my disease from progressing, I’m willing to take the risk. Samantha is currently fundraising to pay for the treatment and the travel involved.