Endometriosis finally recognized as a long-term disease

Endometriosis, a gynecological disease, responsible for debilitating and chronic pain, which ruins the lives of a million and a half of French women and can cause infertility, is recognized as a long-lasting disease, today, by a vote at the unanimity of the National Assembly. This should lead this ADL to be covered 100% by health insurance. However, this resolution is not “binding”. This vote comes two days after the announcement by the President, Emmanuel Macron, of the first national strategy to fight endometriosis.

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« It was time ! “: The announcement on Tuesday of a national strategy to fight endometriosis by Emmanuel Macron raises the hope of better knowledge and management of this disease, from which one in ten women in France suffers, still too often in silence. ” It is not a women’s problem. It’s a social problem “, Estimated the president on the subject of endometriosis, which affects more than two million French women and is the first cause ofinfertility.

To move forward on this subject which ” close to heart “, He announced the launch of the” first national strategy to fight against endometriosis “, largely inspired by the report submitted by the gynecologist and LREM MEP, Chrysoula Zacharopoulou. This plan will be articulated around three main axes. It will be first of all about ” better understand this disease and its causes, and find therapeutic treatments “, Which will involve deploying resources for research” up to the challenges “. Then each region will have to “ precisely identify regional care channels with at least one referral and expertise center ».

Company recognition

Finally, ” we must develop what we could call a “endometriosis reflex“to all audiences: at school, at university, at home, at the office, and even, and above all I would say, in medical circles “, Believes Mr. Macron. Ms. Zacharopoulou greeted AFP ” recognition of the whole of society vis-à-vis millions of women who suffer».

« France will be a model in Europe », She rejoices. ” It feels good to hear that from the head of state », Also reacts Tiphaine, 31 years old, suffering from endometriosis, after 10 years of suffering and wandering. In her, the pains started when she was 20 years old. So strong that she had to stop studying law.

« I saw about twenty doctors: general practitioners, gynecologists, gastroenterologists, she says. I remember hearing “again you? we will give you a package!”. But never the word “endometriosis” ». Until she ran into, at 28, a surgeon who believed her, listened to her and finally asked a diagnostic, opening the gate to a support.

Endometriosis is a still poorly understood disease that affects 1 in 10 women. © EndoFrance

Hope for better management of endometriosis

She now expects “concrete actions”: ” In one class, at least three young girls have endometriosis. If we did an automatic diagnosis, it would save a lot of time », She believes. Endometriosis, on which knowledge remains incomplete, is linked to the presence of cells of uterine origin outside theuterus who react to hormones during the menstrual cycles. Sometimes asymptomatic, it can also be manifested by heavy periods and severe pain. Its ignorance leads to a diagnosis delay of seven years on average.

« It has been 20 years since we warned about endometriosis, it was time for the problem to be taken seriously, underlines Yasmine Candau, president of the EndoFrance association. A research program, a care sector in all regions, better continuing education for doctors, all of this is going in the right direction ».

This is the first time that we have had a national strategy and it is a very good thing

« This is the first time that we have had a national strategy and it is a very good thing “, Also greets Nathalie Clary, president of the Endomind association, after a first plan drafted in 2019 but delayed by the health crisis from Covid-19. « We must now have a budget On the table, she asks.

MP LFI Clementine Autain presented this Thursday to the National Assembly a resolution aimed at recognizing endometriosis as a long-standing condition duration which was adopted unanimously. Endometriosis is recognized among the thirty diseases classified as long-lasting conditions (ALD). The disease is no longer covered by the so-called ALD 31, “off the list”, which means that only the most severely affected women, with treatment for more than six months, benefit from comprehensive care.

Minister of Health Olivier Véran, for his part, clarified on Wednesday that he would convene on February 14 a first interministerial steering committee which will notably rely on associations.

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